Today was a first for little miss Harli. She made it through the whole day without an episode. This is a very big step for her, and hopefully we can keep the trend going. Other than not having any episodes it was a pretty quiet day here at Riley. She continued to handle her 29ml of milk nicely and everything continues to move through her body correctly. Blair stayed in the room today with a runny nose and did not want to take any chances. Since Blair had the runny nose I chose not to kangaroo just to be on the safe side.
Depending on how tonight transpires they might try turning down her vapotherm machine tomorrow. That will be another milestone for Harli, meaning it will be the lowest that it has ever been. They continue to turn down the heat in her bed to see if she can control her body temperature on her own. So far that has been working out pretty well.
Today they measured Harli and she is at 16.25" long meaning she grew three quarters of an inch since last Sunday. Harli continues to gain weight putting her at 1680 grams, or 3lbs 11ozs. I hope tomorrow in rounds they tell Blair how much she has gained for the week because I'm sure its a decent amount. Our little girl continues to take steps in the right direction, and we continue to ask for prayers in support for our family.
"With man this is impossible, but with God all things are possible." Matthew 19:26
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