Sunday, April 29, 2012

April 29, 2012

Just wanted to give everyone a little update.  Harli continues to grow and she is continuing to get better with her feedings.  Blair still has to take her to doctor appointments a few times a week.  Harli is weighing in at 7lbs 14ozs, and hopefully this week she breaks the 8lb mark.  I also wanted to get a few pictures on here to everyone can see how much she has grown.








This is the picture when Blair and I first got Harli home. A day we will never forget.

Tuesday, April 17, 2012

April 17, 2012

Some have probably heard that last Wednesday April 11 Blair and I were able to bring Harli home.  Where it seems like such a huge step, we are still far from being out of the woods.  Harli came home on a heart monitor and also a feeding tube.  The heart monitor has only alarmed three times, due to Harli not breathing for twenty seconds.   She is still trying to get the concept down of suck, swallow, breathe and until she figures that procedure out we have to be on the feeding tube.  Blair is allowed to breast feed a maximum of six times per day and we are allowed to give Harli a total of two bottles per day.  Since being home the amount of successful feedings has declined, but we are working everyday with her. We have to keep Harli on a very tight schedule with feedings every three hours, which really cuts into the sleeping time but we are getting the routine down. Since Harli has no immune system, the doctors keep stating that the least amount of people that Harli is around the better off she will be.   Please continue to pray for our family and especially for Harli that she continues to grow and develop.

Blair and I have to continue to take Harli to Riley for doctor appointments for the next several months.  They are still following the progression of her eyes, hearing, and her growth. 

I wanted to apologize for not having anything on the blog the past couple of weeks, but we have been working on the house project which was completed early last Wednesday morning.  I will work on getting some updated photos on the blog in the next couple of days.