This morning was not much different. Harli continued to have episodes, some requiring stimulation and some she was able to recover on her own. The nurse practitioner decided not to have her blood work checked, to see if she is low on blood, since she has her weekly blood work tomorrow. The last time her blood work was done she was a little low, but wondering now if she is getting a little tired from having to work harder. Her color was a little more pale today, which has not been the case since right before she got her last blood transfusion. They did raise her oxygen up from .5 liters to 1 liter to see if that would help. They also weight adjusted her caffeine for a little added support. Harli continues to be having problems with her nose getting congested due to the dry air in the module. Until last week she was always on humidified air and now she is not.
Blair and I both got to hold Harli for a large amount of time. Blair also got to do non-nutritive feedings which were not very successful. Harli almost seemed as if she could not breathe very well so she really was not into doing anything but trying to breathe. They have continued to suck her nose out, but are not able to get everything cleared up yet.
Harli weighed in at 1950 grams, or 4lbs 5ozs. She has gained a little over 200 grams in the past week and a half. She is really starting to fill out and her strength is amazing to witness. She definitely has her own personality. Harli did get moved into a crib today!
"I will never leave you or abandon you." Hebrews 13:5
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