March 18, 2012

Last night was another great night for Harli.  She had no episodes and pretty much slept throughout the night.  They did have to change her milk fortifier from the liquid, because they ran out of it, to the fortifier that they send babies home on.  Just one more step towards getting to take Harli home!!!

Today was another great day.  Harli only had one episode, which did not require any stimulation.  She did breast feed three times today, two lasting fifteen minutes and the other lasting for eighteen minutes.  She seems to be getting the whole routine down, but still continues to get tired.

Harli's length is now 18" long and she weighed in at 5lbs 10.5ozs, which she had a very large bowel movement right before we weighed her so it was no surprise she lost some weight.  She continues to grow and they have actually lowered the amount of fortifier which they are giving Harli because of how much weight she has put on.  Harli continues to do well with no oxygen which means now we just have to work on feedings and the episodes.  I know with time these things will work themselves out.

Please continue to pray that Blair and I stay strong.  This has been a very long journey and there is starting to get more and more stress with everything that needs completed before Harli can be released.

I was being ornery today and pulled out my feeding tube!